This is not farming. This is about Jo
Jo has Eczema. Poor kid, it is all over his body. It makes him red and rashy. It makes him uncomfortable and it effects everything; sleeping, eating, washing, clothing choices etc. Everyday we plan around eczema. Moisturise before going outside, bath after being outside. What pjs are clean, will they aggregate him, how can I make him warm enough without being itchy.
We have been battling this with him since November last year when he was just 4 months old.
We have tried so many balms/mositurisers etc we could open a pharmacy with all we have.
We tried: Paw Paw, aqueous cream, oats, olive oil, zinc, non ionic cream, sorboline, manuka cream, goats milk, coconut oil, beeswax ........
Numerous visits to the GP, numerous tubes of steroid cream and prescription moisturiser and it wasn't getting much better. It did once and we were pleased. But it was back a week later.
The GP insisted that it was just immature skin. We just had to moisturise him 6 times a day and keep up the steroid cream. The GP was adimant that it was not a food allergy, that testing would be inconclusive and a referral was not needed.
Well. I had read enough online (shhhh I know, Dr. Google and all that) and heard enough stories from other people that I was sure this was not the case, and it was very likely a food alllergy or at least an intolerance.
So I found a specialist that did not require a referral.
And guess what? A food allergy. To Eggs and Peanuts. We were eating these foods on a daily basis!!
| Eggs. Eggs, cheap protein eggs. |
| No more birthday cakes like this for a while......it was delicious |
Our current 'go-to' selection of products are: BaBu Bottom ( + everywhere) healing balm, Atawhai farm Goats milk salve, Atawhai farm goats milk soap and Dermol steroid cream......alongside a massive bottle of sorbolene moisturiser.
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| We can't go anywhere without these. |
What does this mean for the farm? Will the chickens and ducks go?? Not yet. We will keep them for now. We are sharing the eggs out between local charities and groups who can make use of them. And a few friends are enjoying a good supply.
Of course, this blog post is only the tip of the ice berg of what we have been through. I can't begin to explain the magnatude of the emotional strain, mental rollercoaster and physical exhaustion we have been through.....and will continue to go through.
I can't tell you how hard it is to not sleep more than 2 consecutive hours a night for 8 months. I can't tell you how hard it is to question a GP, someone who we are meant to trust with our health. And I cant put into words how terrible the home environment is when we are all stretched to our limits, tip toeing around Jo's needs and Ace's 'left out' tantrums.
We still have a long way to go.
And like Ace he has sensitive skin. When Ace was little he would get 'welts' in the shape of toys that he sat on or things that he bumped into. The GP described it like Dermagraphism.
He has grown out of it mostly and now only happens with severe scrapes. Jo's sensitive skin appears as discoid eczema; when patches of skin are irritated by something rubbing and making the skin aggrevated. He has heaps from his carseat.
I can't tell you how hard it is to not sleep more than 2 consecutive hours a night for 8 months. I can't tell you how hard it is to question a GP, someone who we are meant to trust with our health. And I cant put into words how terrible the home environment is when we are all stretched to our limits, tip toeing around Jo's needs and Ace's 'left out' tantrums.
| just another day in the plastic carnage. |
We still have a long way to go.
And like Ace he has sensitive skin. When Ace was little he would get 'welts' in the shape of toys that he sat on or things that he bumped into. The GP described it like Dermagraphism.
He has grown out of it mostly and now only happens with severe scrapes. Jo's sensitive skin appears as discoid eczema; when patches of skin are irritated by something rubbing and making the skin aggrevated. He has heaps from his carseat.
Will Jo grow out of his eczema? Maybe. Will Jo grow out of his allergies? Maybe too. Will I be finding a new GP that I can trust.......probably.
Thats all for now.....
P.s If you noticed there are no pictures of Jo and his wounds, that is because he can't decide for himself if he wants you to all see that. I will put up pictures of him (and Ace) occasionally, but not while he is sore and inflamed.










